When Pramod Thapa walked into the Sunburst Lodge at Sun Peaks Resort, the British Columbia ski hill I visited last weekend as part of a tasting tour of BC wine country, I recognized his gait immediately. He doesn’t have the typical cattywhompus walk of a kid with cerebral palsy; at 21, he’s been fortunate enough to progress into a more typical movement pattern that comes off as a young male swagger. Still, for someone familiar with CP, it’s evident. Yet Pramod also moves like a ski racer—shins pressing against the fronts of the boots when walking, using their natural support to avoid the awkwardness inherent to wearing ten pounds of metal and plastic on each foot.
Pramod (pronounced “promo”) stopped short when the woman I was skiing with, Canadian ski racing legend Nancy Greene Raine, flagged him down. She realized that as the mother of a budding adaptive skier with cerebral palsy, I might want to meet him. Pramod perched one Lange boot on its heel—a typical racer’s resting posture—and shook my hand. When he started speaking, I realized that unlike Graham, he has a major speech impediment. He can speak well enough to communicate, but only if the listener has had, say, a few years’ experience tuning in to how the general population with cerebral palsy communicates. Pramod struggles to hug his mouth around vowels, and stumbles over consonants. Listening to him speak requires intense concentration, but he has a lot to say.
As we huddled around the hot, cottony sticky buns the lodge pulls out of the oven mid-morning every day, Pramod and I talked about his ski racing history. About how after immigrating to Canada from Nepal as a kid, an adaptive ski instructor recognized that he might be the type to enjoy skiing. About how and whether we should go about transitioning Graham from a sit-ski guided by an instructor holding tethers to a sit-ski he guides himself using outriggers, which are like hefty ski poles with extra tiny skis at the bottoms. About how now, in a bid for the Canadian paralympic alpine team, Pramod is having to fight for the right to use kids’ skis, instead of the regulation (read: longer and heavier) men’s skis the other guys he competes against use.
Pramod comes from a long line of sherpas. He can’t be more than 5’2”, and he must weigh 100 pounds soaking wet. I can’t imagine a person his size racing on the same skis my six-foot-something brother and father use. As we talked through the issue, he used his hands—hands seemingly unaffected by cerebral palsy—to describe the methods he’d been using to pressure the smaller skis around the turns in that day’s slalom and GS training. Fingers straight, hands tilting in parallel to mimic the skis beneath his feet, Pramod looked like any other ski racer talking shop. I realized that in a world where his body and his speech likely often prevent him from participating in a typical way, he has found a sport where he can use his hands to communicate the same way everyone else does. He’s found his sport. I also realized that when it comes to my own kid, it’s more important to me that he learns to love a sport than that he learns to love what I’ve long considered my sport.
Which is why this weekend, along with something like a third of all Americans, we’ll be watching the Super Bowl. In an unpredictable combination of rare genetics, Graham has inherited a love of football. We don’t know how. We don’t know why. He “plays football” by knee-walking to and fro across the living room floor, hurtling his body against the couch or a chair or the dog occasionally, claiming touchdowns and wins according to rules we don’t understand in any way. But he loves it. So it seems like this year especially—when the Seattle Seahawks kick off their second consecutive Super Bowl—it makes sense to sit down and watch. And it makes sense for me to sit down and learn, the way Pramod’s parents are likely doing also, that it doesn’t matter what gets your kid fired up. What matters is that he’s fired up at all.
I’d have photographed this recipe on a Seahawks jersey if I could, but we’re not big enough fans to have that sort of thing. Nonetheless, when Super Bowl XLIX kicks off this weekend, we’ll be eating wings with millions of others, smothered, in our case, with butter and harissa. You can use a store-bought harissa for this, but the homemade kind from A Boat, a Whale and a Walrus works spectacularly. Note that each harissa will vary in spiciness, so you may need to adjust the heat to your own taste. I made this batch knowing there will be kids at our party on Sunday.
Now get fired up, people. Two days ’til game time.
Roasted Harissa-Glazed Chicken Wings (PDF)
Active time: 10 minutes
Start to finish: 35 minutes
1 stick (1/2 cup) unsalted butter, melted
1/4 cup harissa, plus more if desired
1 1/4 pounds chicken wing segments or drumettes
1 cup plain whole-milk yogurt
Preheat the oven to 475 degrees F. Line a baking sheet with parchment paper and set aside.
Stir the melted butter and harissa together to blend. Divide the mixture between two large mixing bowls. Add the chicken pieces to one bowl, stir to coat the wings, then spread them out evenly on the prepared baking sheet.
Roast the wings for about 20 minutes, or until the wings are bubbling and crisp at the edges. Transfer them to a paper towel-lined plate to drain for just a moment, then add them to the fresh bowl of harissa butter. Stir to coat the chicken, then transfer the chicken to a platter and shower with sea salt. Serve hot, with the yogurt on the side for dipping.