It stings a little, deep down, when I have to admit that it hurts to dry my hair. It’s not a yelping pain or a whimpering pain, just a constant, low-level annoyance. At first, when I’m giving the ‘do the initial all-over heat blast, there’s just general arm fatigue. Then, when I get down to the nitty gritty, with the brush twirling, my hands start to cramp–first my wrists, then my fingers. Despite all the formal medical indications of lupus, having trouble with the hairdryer is, for me, the single most dependable symptom.
But yes, here it is: March. This is the time of year when lupus gets to me. It’s as predictable as the camellia bush by our front door, only nowhere near as pretty. The days lengthen, and the wind whips, and my body sags. Life starts to sting. When people ask how I’m feeling, like they often do, it feels strange to want to say, “I’m good, except for the hair-drying part.” (Thank goodness I have a good haircut.)
It does make me feel a bit better to hit the farmers’ market around the Ides of March, where you can’t walk two stalls without tripping over some poor sprout of a vegetable who’s clearly had a rough week also. Take stinging nettles, which are sold in half-pound plastic bags all spring at Seattle-area markets. They were just napping on a wet hillside somewhere, so innocently, when someone came and snipped them out of the ground, probably cursing at them. Nettles aren’t like tomatoes or apples; no one ever wants to touch them. People just stare and point, and then, in most cases, walk right by.
I like nettles for three reasons:
1.They’re really easy to cook.
With a lot of other dark leafy greens, there’s washing and chopping and futzing involved. Not nettles. Sure, they sting if you touch them. That always works to my advantage. It gives me an excuse to upend that big bag of greens and dump them directly into boiling water, instead of spending any time worrying about sticks or bugs. (P.S. Boiling water kills things.)
2. They taste great.
I like to think of the taste of nettles as somewhere between mint and spinach. They have a fabulous affinity for pestos, so every year, usually when I start getting cranky about the weather, I make a pesto with whatever nut and herb combination happens to inspire me at the moment. This week, I went for tradition, with a hint of lemon.
3.Nettles don’t last.
They’re weeds. They’re wild. They sting. But like anything worth eating, they have a definite season. And since my complaints generally line up pretty well with their growing season, it’s often quite nice to focus equal attention on their appearance and disappearance.
I have an anti-lupus music compilation on my computer called “A Mix for Sunnier Times.” It’s a cacophonous mismatch of tunes, everything from Scooter Lee to Bill Withers to ZZ Top. Every song has to do with the sun. (This is a little ironic, because lupus is exacerbated by sun exposure.) I forget about it every year, only to rediscover it in March. And every time I sit down, feeling blah, and hear the synthesizer notes alternating between earphones as I Wear My Sunglasses at Night starts blasting, I feel a little brighter.
After all, nothing lasts forever.
Spaghetti with Fresh Peas and Lemony Nettle Pesto (PDF)
Stinging nettles are delicious edible weeds with a layer of prickly hairs on the sunny side of each leaf. They will sting if you touch them raw—but cooking them denatures the sting, rendering them perfect fodder for a springtime pesto. Add chopped grilled chicken, if you’re looking for a bit more heft.
Active time: 20 minutes
Serves 4
1/2 pound fresh nettles
2 large garlic cloves, finely chopped
1/2 cup toasted pine nuts
1/2 teaspoon sea salt
2 teaspoons lemon zest
2 tablespoons freshly squeezed lemon juice
1 cup extra-virgin olive oil
1/3 cup grated Parmesan cheese, plus more for garnish
1/2 pound spaghetti
1 cup fresh peas
Bring a large pot of water to boil for the nettles. Dump them into the water (don’t touch them!) and cook for 2 minutes, stirring. Drain in a colander, then squeeze as dry as possible, using a kitchen towel to wring out extra water, if necessary. (You should have about a cup of nettles.)
Whirl the nettles, garlic, pine nuts, salt, lemon zest, and lemon juice in a food processor until smooth. With the machine on, add the oil in a slow, steady stream, whirling until combined. Pulse in the cheese, then season to taste. Set aside.
Cook the pasta until al dente, according to package directions, adding the peas to the cooking water about 3 minutes before the pasta is done. Reserve a cupful of the cooking water.
Strain the peas and pasta, then return them to the pot, along with 1/2 cup of the pesto and about 1/4 cup of the cooking water (you may need more or less, depending on how loose you like your pasta sauce).
Serve immediately, sprinkled with additional cheese.
Spoon Theory
Susan wrote me with a great link to a poignant, touching post on living with a chronic illness. The author referenced Spoon Theory, which I hadn’t heard of but serves as a more tangible tool for explaining how Lupus feels than perhaps The Wolf does. Do me a favor: read it (or put it in your pile), then come back here.
I have many more spoons than Christine does, and reading about her twelve made me realize how much I’ve forgotten about those first few awful months, and how lucky I am to have escaped them. I probably have about fifty spoons today, and although I haven’t had to use them for small daily activities (buttoning shirts, walking down stairs, blowdrying my hair) in a few years, I’ve also tended to take on things that use up multiple spoons at once, or spend a week’s worth of spoons in a day. This is what has to stop.
I have the luxury of earning spoons back, like accruing secret weapons in a video game. A nap is worth a spoon; a good nap is worth two.
These past few years I’ve been running with my (relatively large) bouquet of spoons, all heavy antique silver spoons with curls and flowers on the handles, glancing backwards as if there’s some spoon-eating Pac-Man coming after me, scooping up what I drop with those v-shaped jaws and taunting me until I have a chance to pant in the corner of the screen while the game starts over.
I haven’t forgotten to tell you about the dinner in Boise – I’ve just been trying to think of how to explain it, and Spoon Theory is perfect.
Here’s how the dinner works: every year, my friend Melanie (who you will one day know as a great Idahoan winemaker) and I auction off a wine pairing dinner at an event that raises money for the ski racing club we both participated in as kids. Someone buys the dinner (for $2500 this year) and I design a menu. She pairs wines to my courses, typically digging deep into the knowledge of the Chateau Ste. Michelle wines she acquired while she was a winemaker there. This year, we had the opportunity to include her first vintages of viognier and rose from her own winery, Cinder, which were wonderful. (I’m sure she could describe them more intelligently.)
This year was a seated 5-course dinner for twelve people, and it went relatively flawlessly. I’d have preferred if the client’s brand-new Wolf range hadn’t had a layer of primordial ooze on the bottom of the smallest oven that I neglected to see when I preheated it, the smallest of three, if you’re not counting the warming drawer or the convection-equipped microwave. But no one seemed to notice the smoke, thank goodness, and the lamb was just the rosy shade I’d planned. And because my saintly father had taken the day off of work to help me wash dishes and shell (grooooaannn) about 500,000 fava beans, I was completely calm and organized by the time the guests arrived, and dinner pretty much went off without a hitch. As the last course went out, I swelled inside, riding a self-congratulating wave of pride in my work, excitement about the evening, and inspiration for future meals. It was bittersweet, though. As I stood at the counter drying dishes while the guests moved into yet another after-dinner bottle, I felt sad to have let go of something that makes me feel so successful.
But 18 combined hours in that sweet, sweet kitchen used a week’s worth of spoons. The next morning, after a fitful night of sleep, I crept down to my parents’ living room couch and curled up next to a dog, semi-conscious, not yet able to approach a coffee cup because the dexterity necessary, what with the cream, the sugar, the spoon, and all that, seemed entirely too complicated. I felt like a fern growing backwards, curling back down toward the ground. Now, almost a week and ten hours of sleep a day later, I’ve rebounded.
So yes, the dinner went well. But it was my last personal cheffing job, maybe ever, which was deflating and depressing and disappointing. I like doing it, but alas, I am a spoon counter (albeit a lucky one), and I’d prefer to spend my spoons on other things. Melanie looked crestfallen when I told her that next year, when Cinder will finally be releasing a full palate of food-friendly wines made from Idaho grapes, I won’t be volunteering.
The next night, when my father was looking for a way to explain to another parent that I wouldn’t be awake and available to transport teenagers at 2 a.m., he simply said, “my daughter is sick.” It was simple, and effective, I suppose, but hearing him say it out loud for the first time made my heart break, because I knew it was hurting him to say it. Maybe Spoon Theory will travel far enough that he’ll be able to say “she doesn’t have enough spoons to pick them up” and that will be that. Because that’s what he meant, I think.
My husband asked me if he could be a spoon, and I told him yes. He can be many, many spoons.
Here’s one for a tired night. If chopsticks hurt your hands, just use a fork, dammit.
One-Spoon Stir-Fry with Shrimp, Asparagus, and Snap Peas
Recipe 137 of 365
This is “Thai food” reduced to its easiest form, with flavors reminiscent of true yellow Thai curry but none of the techniques or ingredients that can make the process tiresome. I call it “one spoon” because according to Spoon Theory, you sometimes only have one spoon’s worth of energy to use on dinner (and I think this applies to everyone, not just those with Lupus). This an easy one for me, as long as I have someone to help me open that frustrating Thai chili paste jar. Serve it over brown or white rice, or rice noodles.
I used one teaspoon yellow Thai chili paste, but you could use red or green, also. Look for it in the Asian food aisle of your grocery store.
TIME: 20 minutes
MAKES: 2 generous servings
3/4 pound raw large shrimp, peeled and deveined (you can ask your fishmonger to do this, plus remove the tails, if you don’t want to hassle with them while you eat)
1/2 pound (about 1/2 bunch) asparagus, trimmed and cut into 2” pieces
1/2 pound sugar snap peas
2 tablespoons vegetable oil
Salt and freshly ground pepper
1/2 teaspoon to 2 teaspoons yellow Thai chili paste
1 (14-ounce) can light coconut milk
1/4 cup roughly chopped fresh cilantro (optional)
Place shrimp, asparagus, and snow peas in a large mixing bowl. Drizzle oil over all the ingredients, season with salt and pepper, and toss to coat. Set aside.
In another bowl, whisk the curry paste together with about 2 tablespoons of the coconut milk until all the lumps disappear. Whisk in the remaining coconut milk, and set aside.
Heat a large skillet over medium-high heat. When hot, add the shrimp and vegetable mixture, and cook for 3 minutes, stirring, until the shrimp have begun to curl and are almost all pink on the outsides. Add the coconut milk mixture, increase heat to high, and simmer 3 more minutes, stirring occasionally. Stir in the cilantro (or just plop it on top of each bowl, like I did) and serve over rice or rice noodles.
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